Friday, September 26, 2008

Am I still sick?

I don't even know that I have CMS anymore. I don't have any symtoms. I've only been taking 1 60mg Mestinon tablet, and 1 2mg Albuterol tablet 3 times a day (with meals)...and I don't feel ANY symptoms...none.

I feel so good lately that I forget how bad things had gotten for me. I'm eating like crazy, I'm lifting weights, I've taken my mountain bike around our neighborhood lake twice (2 laps - 2.5 miles each time) this week.

Of course, my attitude is infinitely better. I also have a new permanent full-time job doing web and graphic design, which is very satisfying.

The only thing missing is my wife.

:(

Tuesday, September 2, 2008

The Silver Bullet - Albuterol

I had recently noticed in my comments that some of you CMS patients are having success with Albuterol (thanks Marika & Denise!!!).

I had a follow up appointment scheduled with my neurologist, Dr. Ringel almost 2 weeks ago so I thought- why not ask him If I can try it?

I've been on Ephedrine Sulfate capsules the past 4-5 months (and mostly happy) so I wasn't in a big hurry to try something new, but I got a prescription for 2mg tablets of Albuterol and took my last Ephedrine capsule on Saturday, Aug. 23.

It's been 10 days since i've been taking Albuterol, I take a single 2mg tablet each time I take a 60mg Mestinon (3 or 4 times a day).

Uhhhh.....AWESOME!

I feel soooo much better!

My preliminary feedback is that Albuterol works MUCH BETTER than Ephedrine in treating my CMS symptoms, and without the nasty Ephedrine side effects. I have always used my chewing as a barometer for how the rest of me is feeling- I can CHEW MY FOOD AGAIN!

I'm very excited!

Thanks again to Marika & Denise!!!!