I don't even know that I have CMS anymore. I don't have any symtoms. I've only been taking 1 60mg Mestinon tablet, and 1 2mg Albuterol tablet 3 times a day (with meals)...and I don't feel ANY symptoms...none.
I feel so good lately that I forget how bad things had gotten for me. I'm eating like crazy, I'm lifting weights, I've taken my mountain bike around our neighborhood lake twice (2 laps - 2.5 miles each time) this week.
Of course, my attitude is infinitely better. I also have a new permanent full-time job doing web and graphic design, which is very satisfying.
The only thing missing is my wife.
:(
Friday, September 26, 2008
Tuesday, September 2, 2008
The Silver Bullet - Albuterol
I had recently noticed in my comments that some of you CMS patients are having success with Albuterol (thanks Marika & Denise!!!).
I had a follow up appointment scheduled with my neurologist, Dr. Ringel almost 2 weeks ago so I thought- why not ask him If I can try it?
I've been on Ephedrine Sulfate capsules the past 4-5 months (and mostly happy) so I wasn't in a big hurry to try something new, but I got a prescription for 2mg tablets of Albuterol and took my last Ephedrine capsule on Saturday, Aug. 23.
It's been 10 days since i've been taking Albuterol, I take a single 2mg tablet each time I take a 60mg Mestinon (3 or 4 times a day).
Uhhhh.....AWESOME!
I feel soooo much better!
My preliminary feedback is that Albuterol works MUCH BETTER than Ephedrine in treating my CMS symptoms, and without the nasty Ephedrine side effects. I have always used my chewing as a barometer for how the rest of me is feeling- I can CHEW MY FOOD AGAIN!
I'm very excited!
Thanks again to Marika & Denise!!!!
I had a follow up appointment scheduled with my neurologist, Dr. Ringel almost 2 weeks ago so I thought- why not ask him If I can try it?
I've been on Ephedrine Sulfate capsules the past 4-5 months (and mostly happy) so I wasn't in a big hurry to try something new, but I got a prescription for 2mg tablets of Albuterol and took my last Ephedrine capsule on Saturday, Aug. 23.
It's been 10 days since i've been taking Albuterol, I take a single 2mg tablet each time I take a 60mg Mestinon (3 or 4 times a day).
Uhhhh.....AWESOME!
I feel soooo much better!
My preliminary feedback is that Albuterol works MUCH BETTER than Ephedrine in treating my CMS symptoms, and without the nasty Ephedrine side effects. I have always used my chewing as a barometer for how the rest of me is feeling- I can CHEW MY FOOD AGAIN!
I'm very excited!
Thanks again to Marika & Denise!!!!
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