If you have CMS, these are pretty much your treatment options right now. Well, really...Mestinon is your only option unless you don't mind jumping through a bunch of hoops.
Let's review-
Ephedrine is derived from Ephedra which comes from the Ma Huang plant- largely used in traditional Chinese medicine for the past 5000 years. It's used primarily as a decongestant and to treat low blood pressure.
On April 12, 2004, the US Food and Drug Administration issued a ban on dietary supplements containing ephedra because of it's use in making crystal methamphetamine. As a result, there is now only one place to get Ephedrine Sulfate, and that's West-Ward Pharmaceuticals.
3,4 DAP or 3,4-Diaminopyridine is a research chemical currently being used to treat Lambert-Eaton myasthenic syndrome, and some flavors of CMS (apparently mine). In order to get 3,4 DAP your neurologist will have to administer lab tests every 3 months, serial ECG's and an electroencephalogram. It looks like there are some chemical supply websites that will sell 3,4 DAP - Spectrum Chemical has it for $45.25 per gram.
EN101 is a research medication made by Amarin Corporation and is currently in Phase IIa clinical study- mainly in the UK and Israel. EN101 is being developed as a replacement for Mestinon.
So there you have it.
Tuesday, March 18, 2008
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